Irony!

Oh, the irony of my last post (written almost a month ago)!
OK, so a lot of things happened in the following days of me writing that post:

1. I found out I'm in remission! WOHOOO! Super SUPER important, if I want a transplant. (In other words: super SUPER important, if I want to live.)

2. I started consolidation chemotherapy. Meant to be done as an out-patient. I go home afterward.

3. Yeah, MEANT to be done at home. Notice the verb tense being used there. I had (yet again! Surprise surprise!) another bad reaction to the chemo (the worst so far) and ended up back in the hospital again.

I thought I'd only be admitted for a few days, til they could finish up the chemo and observe me, but I ended up getting stuck there for THREE FREAKIN' WEEKS. I had a couple of complications but they had all cleared up by the second week, so I was ready go home, but nope, got stuck there because my doctor wanted to keep me there while my counts were low, which made no sense because my counts would have been low at home anyway had I done the chemo at home as an out-patient, like originally planned! Arghhh! Toward the end I had to beg her like crazy to let me go.

As if that wasn't bad enough, I was put in isolation during that stay (yay!), but then they ran out of isolation rooms so they put me and another patient who was in isolation together. Yes, that's right, shared isolation. It was so fucked up. It was only for the last week, but that was messed-up enough, to put it mildly.

Anyway, I'm home now, and have been oddly feeling under the weather since I got home, despite my tests showing that pretty much all seems well when I go in for my many, many clinics. I've been trying to give my consent for the transplant to go ahead, but trying to communicate with the transplant team has been like pulling teeth. I have a consultation with them on Wednesday though, so hopefully that will get things into gear.

Ah, the transplant team! That's true. I didn't get to really write about that, because my initial consultations happened while I was admitted for my bad reaction to the consolidation chemo. OK, I will write about that in my next entry and explain everything.