I wrote a really long post on Facebook to update folks on what's new, and since the post was so long, I decided to double-post it here. I don't plan on making that a habit, by the way. It was just such a long post and I remembered how little I've been posting here, so I figured eh, why not, I'll do a copy/paste.
And without further ado!
Super good things: my meds have been switched around, and I no longer spend all day every day nauseous. It's been a good week or so now.
The less good things: I have infections and some kind of virus I don't quite understand the details of, and that means even more meds and a lot of pain from the infections in the meantime. Also, one of the anti-virals hasn't been working, so I might have to switch meds again, and it may involve a clinical trail. ughhhh. Just so much going on.
I'm currently on 12 medications, many of which I need to take 2-3 times a day. I have whole charts to follow. Sometimes I make mistakes, even with the charts.
It takes me about 15 minutes to take all my morning pills. The coffee percolates during that time, and I usually finish off 1 entire water bottle swallowing the pills.
I have to wash my hands before & after handling certain medications. My hands are raw from all the washing.
As an extra bonus, most of these meds are very hard on the stomach, to say nothing of their combined interactions.
My nurses are so great about it. I'm already thinking about cards to make them and chocolate or wine to send them when all of this is said and done. They're much more pleasant than my doctor. He's nice, but he's all gloom & doom (I appreciate and WANT the honesty, but he's harsh); meanwhile my nurses are like "C'mon Marina, you can do this! I know it's rough. Just gotta hang on for a few months and you'll be done with the meds, OK? You got this!! "
They are so optimistic with me, and NOT in that fake positivity way. They're not asking me to be happy or to find the positive in illness, or to hide my true feelings to make others feel more comfortable. They just want me to pull through the bad parts because they know there's an end to that eventually, and when I get there (and I *will* get there), that's when I get to feel normal again.
And that's when I'll be socializing again and going places and having fun again...
For now though, I'm so happy to be in my own home, my cozy cozy apartment, my kitchenette, my huge lovely bed, and of course to be here with my lovely husband who's always making me laugh, watching old shows, playing Nintendo with me, and cooking me feasts that make wonder "what did I do to deserve this?"
Feasts that make the apartment fill up with WONDERFUL, comforting, delicious scents---so relaxing & inviting.
A complete 180 from the smells of a hospital.
.
I love my home and I'm so, so, so super happy to be here.
We just gotta kick these infections and virus to the curb...scram, you little invaders!
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