I've been off immune-suppressants for 13 days now! So far the only signs of GVHD I have is GVHD of the skin; got a pretty huge rash on my face a few weeks ago that looked like I had a chicken pox! My doctor gave me the first line of intervention, which is steroid cream, and that seems to keep it under control. As gross as it looks, I don't mind GVHD of the skin as long as that's where it stays. Just don't go after my organs, and all will be well, alright?
Speaking of which, I need to be super vigilant every day about any little change that may occur in my body. What would just be a normal stomachache for most people could be something very dangerous for me, so I constantly have to be on alert. As such, I'm also constantly in a state of anxiety. It's pretty exhausting (to put it mildly) and I wish I could handle it better. I'm just trying to get used to it but I'm really tired all of the time. I'm seeing a therapist but he isn't very useful, unfortunately.
At least most of my blood tests have been giving good results, so there's that. Lots of ups and downs, to be sure, but mostly things have been good. In fact, my doctor even said that if my next appointment (that's tomorrow!) goes well and if all seems stable, he might even change my appointments to every two weeks instead of the once-a-week schedule we have going now.
Also! I had my first vaccine last week. So we're already starting with that. Pretty exciting, huh? My first one protects against pneumonia and a bunch of other things I've already forgotten. I still need two follow-up vaccines for this one. In all, it's going to take 2 years to get through all my vaccines. In the meantime, I just gotta really hope that I don't run into any non-vaccinated folks. That would be pretty scary.
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