I saw my doctor today, and he was more optimistic than usual. Meaning he didn't just sit there and spit out percentages and possibilities, so that was nice. And he seemed more upbeat than he usually does. Yay. Anyway, I found out a bunch of stuff:
-I'm still neutropenic. STILL. Even though I finished my last bout of chemo three weeks ago. As it turns out, though, this is normal; each time I get chemo, the
longer the neutropenic period is, as my body gets "more & more
beat-up". So, house arrest continues (sigh), BUT my counts are coming back up. I'm not yet quite sure what this means for all the partying I had planned for this weekend. GET ME OUT OF THIS APARTMENT GODSDAMMIT. -__- Cabin fever is eating me from the inside!
-Now, this is pretty interesting. A potential donor for me was found!.... but only matched me at 8/10. (The lowest a match
should be is 9/10.) According to my doctor, given that a transplant won't
increase my chances of survival by THAT much, added to the risk of a
8/10 match plus the fact that transplants are risky in general, he
decided that it's a no-go and opted for more chemo instead; one round the second
week of July, and one more in August, then they stop.
-He said
they would continue to search for a donor, but if 3-4 years go by and I
don't relapse, they would stop looking, as generally no relapse in 3-4
years means a relapse isn't likely to happen again!
-Overall, my doc
says he's pleased with the way things are going and that I react to
chemo well. When I pointed my horror to nearly ending up in the
ICU last time and how going into septic shock was the most horrible
experience of my life, he said, "well, these are risks of chemotherapy."
NOT rudely, NOT condescendingly, not dissmissive...just
matter-of-factly. I'm still scared to death of chemo, but he made me
feel better somehow. Sorta. It just...it feels good to know that, as scary and potentially deadly as it was, it was a on par with how chemo can be. It'd be a lot worse if the doctors freaked out and said "This NEVER happens!" and/or had to stop the chemo because of it, or something.
Like I said earlier, it was nice to see my doctor being optimistic. The best part is, he talked about me being alive in 3-4 years as some
kind of real possibility instead of some kind of unattainable goal. It's
a nice change.
"The two basic items necessary to sustain life are sunshine and coconut milk."
Subscribe to:
Post Comments (Atom)
Wicked Ranma
I had to unpublish my last post because it wouldn't format itself properly. Weird. Anyway, just came here to say I'm loving the Ra...
-
I have a headache from not sleeping well, as usual. I often sleep 8-9 hours a night, but it's not good sleep. Either I have nightmares (...
-
I got a new mouth ulcer last week and FUCK does it hurt. Today the pain was just unbearable but as I'm neutropenic, the nurses can't...
-
After all these years, I still think EVERY DAY about what a luxury it is to walk around my own home in bare feet and feel the wooden floor b...
No comments:
Post a Comment